Sunday, September 14, 2014
Saturday, September 6, 2014
"It's not an 'S,' on my planet it is the symbol of Hope," says the Superman character on the recent movie Man of Steel, in response to Lois Lane's question why he has an "S" on his chest.
My son Tyler has been through a whirlwind of health care chaos in the last few weeks. On August 8, he was diagnosed with Primary Sclerosing Cholangitis (PSC) and we were told the only cure is a liver transplant. My son is 18 years old and headed to college, but he was forced to take a hiatus to take care of his health. He had no choice.
Last week only 15 days after being diagnosed, Tyler was very, very sick. He was readmitted to the hospital and moved to the top of the transplant list as his blood lab results showed how sick he really was. Only 20 days after he was diagnosed with PSC, he got The Call and he received a new liver that night. So his second birthday is August 28, 2014!
|Team Tyler supporting him just hours before his transplant surgery. Yes, he really is that yellow. VERY SICK kid. #nofilter|
The new liver is his hope. He is a strong young man, but because of the generosity of a family going through an unthinkable misery, Tyler has hope for the future. He will be able to return to college in January and even move into the Delta Upsilon house! Because of the skills and confidence of his surgeons, hepatologists and nurses, he has the hope to continue to live a full and normal life! And because of the support of the literally thousands of friends and family across the nation, he knows that he will be accepted because who he is, not because of a liver transplant. Thank you all for using your abilities to support Tyler and give him HOPE! You are the true Supermen!
|Just a week after surgery, Tyler's color is nearly normal!|
Today, just a few days after his liver transplant, Tyler is working hard to eat, walk and function normally again. But he has hope and confidence that one day soon he will be a normal kid, ready to get back to school and meet people as "Tyler"--just Tyler!
You know, most people with PSC have to suffer with the symptoms for years. Tyler really had a number of weeks with severe symptoms. Most people don't even get as sick as Tyler, though. He has only had a short time to wrap his head around this whole thing, but I know with the support of family and friends he will be fine. We give thanks for the generous donor family who wanted Tyler to live. They graciously gave my son a second chance at life. They gave him just what he needed at a time that he most needed help. They gave him HOPE.
|Tyler and his sisters showing off their K-State Wildcat |
spirit during the game after surgery!
Please consider registering to be an organ donor. Go to www.organdonor.gov and talk to your family so they understand your wishes. Make sure they understand that you want to share life with another person like Tyler!
Thursday, August 21, 2014
They are very confident young men. As babies, we never dressed them alike; choosing instead to dress them in specific colors so Grandma would never have to ask which baby she was holding. Eric always wore green or purple and Tyler wore red. They chose to continue wearing those colors as they went to elementary school, to help their teachers to see them as individuals and their classmates to know their names. We never had to make the tough decision facing many parents of twins to separate them in classes or keep them together. In our small town, there is only one class per grade level! But the boys thrived near each other, while honing their own personality and abilities.